Patterns of disclosure and perceptions of the human immunodeficiency virus in infected elementary school-age children
Identifieur interne : 000334 ( France/Analysis ); précédent : 000333; suivant : 000335Patterns of disclosure and perceptions of the human immunodeficiency virus in infected elementary school-age children
Auteurs : I. Funck-Brentano [France] ; D. Costagliola [France] ; N. Seibel [France] ; E. Straub [France] ; M. Tardieu [France] ; S. Blanche [France]Source :
- Archives of pediatrics & adolescent medicine [ 1072-4710 ] ; 1997.
Descripteurs français
- Pascal (Inist)
- Wicri :
- topic : Enfant.
English descriptors
- KwdEn :
Abstract
Objective: To investigate the patterns of disclosure and perceptions of human immunodeficiency virus (HIV) status in a group of HIV-infected elementary school-age children. Design: A survey. Setting: A referred care university hospital center. Patients: All HIV-infected children born before August 31, 1985, and scheduled for ambulatory follow-up between 1984 and 1993 were eligible for the study. A total of 35 HIV-infected (21 asymptomatic and 14 symptomatic) elementary school-age children (aged 5-10 years) were examined between 1990 and 1993. Main Outcome Measures: Semistructured qualitative interviews were used, 1 with the children and 1 with their parents or caregivers. In addition, 3 drawings per child were also analyzed. Results: Partial disclosure was observed in 14 (40%) of the children, and full disclosure of the diagnosis of acquired immunodeficiency syndrome was given to 6 (17%) of the children. Secrecy regarding serostatus was the strategy used by 15 (43%) of the parents or caregivers involving either complete nondisclosure (n=8) or deception by means of attributing the symptoms to another condition, medical or other (n=7). Perceived health status and clinical status differed for 11 (31%) of the children. Eight children did not identify any illness causality, and most of the others gave prelogical or concrete-logical explanations. Few children were aware of their parent's infection or disease. Conclusion: Human immunodeficiency virus-infected elementary school-age children were exposed to various disclosure patterns regarding their HIV infection or disease, and most children (26/35 [74%]) reported stressful experiences due to HIV regardless of the disclosure patterns.
Affiliations:
Links toward previous steps (curation, corpus...)
- to stream PascalFrancis, to step Corpus: 000325
- to stream PascalFrancis, to step Curation: 000287
- to stream PascalFrancis, to step Checkpoint: 000246
- to stream Main, to step Merge: 003144
- to stream Main, to step Curation: 003133
- to stream Main, to step Exploration: 003133
- to stream France, to step Extraction: 000334
Links to Exploration step
Pascal:97-0548630Le document en format XML
<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en" level="a">Patterns of disclosure and perceptions of the human immunodeficiency virus in infected elementary school-age children</title>
<author><name sortKey="Funck Brentano, I" sort="Funck Brentano, I" uniqKey="Funck Brentano I" first="I." last="Funck-Brentano">I. Funck-Brentano</name>
<affiliation wicri:level="3"><inist:fA14 i1="01"><s1>Unité d'Immuno-Hématologie, Fédération de Pédiatrie, Hôpital Necker-Enfants Malades</s1>
<s2>Paris</s2>
<s3>FRA</s3>
<sZ>1 aut.</sZ>
<sZ>6 aut.</sZ>
</inist:fA14>
<country>France</country>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Costagliola, D" sort="Costagliola, D" uniqKey="Costagliola D" first="D." last="Costagliola">D. Costagliola</name>
<affiliation wicri:level="4"><inist:fA14 i1="02"><s1>Institut Fédératif Saint-Antoine de Recherche en Santé, Institut National de la Santé et de la Recherche Médicale SC4, Université Pierre et Marie Curie</s1>
<s2>Paris</s2>
<s3>FRA</s3>
<sZ>2 aut.</sZ>
</inist:fA14>
<country>France</country>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
<orgName type="university">Université Pierre-et-Marie-Curie</orgName>
</affiliation>
</author>
<author><name sortKey="Seibel, N" sort="Seibel, N" uniqKey="Seibel N" first="N." last="Seibel">N. Seibel</name>
<affiliation wicri:level="3"><inist:fA14 i1="03"><s1>Service de Neurologie, Département de Pédiatrie, Hôpital Bicêtre, Le Kremlin-Bicêtre</s1>
<s2>Paris</s2>
<s3>FRA</s3>
<sZ>3 aut.</sZ>
<sZ>4 aut.</sZ>
<sZ>5 aut.</sZ>
</inist:fA14>
<country>France</country>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Straub, E" sort="Straub, E" uniqKey="Straub E" first="E." last="Straub">E. Straub</name>
<affiliation wicri:level="3"><inist:fA14 i1="03"><s1>Service de Neurologie, Département de Pédiatrie, Hôpital Bicêtre, Le Kremlin-Bicêtre</s1>
<s2>Paris</s2>
<s3>FRA</s3>
<sZ>3 aut.</sZ>
<sZ>4 aut.</sZ>
<sZ>5 aut.</sZ>
</inist:fA14>
<country>France</country>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Tardieu, M" sort="Tardieu, M" uniqKey="Tardieu M" first="M." last="Tardieu">M. Tardieu</name>
<affiliation wicri:level="3"><inist:fA14 i1="03"><s1>Service de Neurologie, Département de Pédiatrie, Hôpital Bicêtre, Le Kremlin-Bicêtre</s1>
<s2>Paris</s2>
<s3>FRA</s3>
<sZ>3 aut.</sZ>
<sZ>4 aut.</sZ>
<sZ>5 aut.</sZ>
</inist:fA14>
<country>France</country>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Blanche, S" sort="Blanche, S" uniqKey="Blanche S" first="S." last="Blanche">S. Blanche</name>
<affiliation wicri:level="3"><inist:fA14 i1="01"><s1>Unité d'Immuno-Hématologie, Fédération de Pédiatrie, Hôpital Necker-Enfants Malades</s1>
<s2>Paris</s2>
<s3>FRA</s3>
<sZ>1 aut.</sZ>
<sZ>6 aut.</sZ>
</inist:fA14>
<country>France</country>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
</titleStmt>
<publicationStmt><idno type="wicri:source">INIST</idno>
<idno type="inist">97-0548630</idno>
<date when="1997">1997</date>
<idno type="stanalyst">PASCAL 97-0548630 INIST</idno>
<idno type="RBID">Pascal:97-0548630</idno>
<idno type="wicri:Area/PascalFrancis/Corpus">000325</idno>
<idno type="wicri:Area/PascalFrancis/Curation">000287</idno>
<idno type="wicri:Area/PascalFrancis/Checkpoint">000246</idno>
<idno type="wicri:explorRef" wicri:stream="PascalFrancis" wicri:step="Checkpoint">000246</idno>
<idno type="wicri:doubleKey">1072-4710:1997:Funck Brentano I:patterns:of:disclosure</idno>
<idno type="wicri:Area/Main/Merge">003144</idno>
<idno type="wicri:Area/Main/Curation">003133</idno>
<idno type="wicri:Area/Main/Exploration">003133</idno>
<idno type="wicri:Area/France/Extraction">000334</idno>
</publicationStmt>
<sourceDesc><biblStruct><analytic><title xml:lang="en" level="a">Patterns of disclosure and perceptions of the human immunodeficiency virus in infected elementary school-age children</title>
<author><name sortKey="Funck Brentano, I" sort="Funck Brentano, I" uniqKey="Funck Brentano I" first="I." last="Funck-Brentano">I. Funck-Brentano</name>
<affiliation wicri:level="3"><inist:fA14 i1="01"><s1>Unité d'Immuno-Hématologie, Fédération de Pédiatrie, Hôpital Necker-Enfants Malades</s1>
<s2>Paris</s2>
<s3>FRA</s3>
<sZ>1 aut.</sZ>
<sZ>6 aut.</sZ>
</inist:fA14>
<country>France</country>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Costagliola, D" sort="Costagliola, D" uniqKey="Costagliola D" first="D." last="Costagliola">D. Costagliola</name>
<affiliation wicri:level="4"><inist:fA14 i1="02"><s1>Institut Fédératif Saint-Antoine de Recherche en Santé, Institut National de la Santé et de la Recherche Médicale SC4, Université Pierre et Marie Curie</s1>
<s2>Paris</s2>
<s3>FRA</s3>
<sZ>2 aut.</sZ>
</inist:fA14>
<country>France</country>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
<orgName type="university">Université Pierre-et-Marie-Curie</orgName>
</affiliation>
</author>
<author><name sortKey="Seibel, N" sort="Seibel, N" uniqKey="Seibel N" first="N." last="Seibel">N. Seibel</name>
<affiliation wicri:level="3"><inist:fA14 i1="03"><s1>Service de Neurologie, Département de Pédiatrie, Hôpital Bicêtre, Le Kremlin-Bicêtre</s1>
<s2>Paris</s2>
<s3>FRA</s3>
<sZ>3 aut.</sZ>
<sZ>4 aut.</sZ>
<sZ>5 aut.</sZ>
</inist:fA14>
<country>France</country>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Straub, E" sort="Straub, E" uniqKey="Straub E" first="E." last="Straub">E. Straub</name>
<affiliation wicri:level="3"><inist:fA14 i1="03"><s1>Service de Neurologie, Département de Pédiatrie, Hôpital Bicêtre, Le Kremlin-Bicêtre</s1>
<s2>Paris</s2>
<s3>FRA</s3>
<sZ>3 aut.</sZ>
<sZ>4 aut.</sZ>
<sZ>5 aut.</sZ>
</inist:fA14>
<country>France</country>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Tardieu, M" sort="Tardieu, M" uniqKey="Tardieu M" first="M." last="Tardieu">M. Tardieu</name>
<affiliation wicri:level="3"><inist:fA14 i1="03"><s1>Service de Neurologie, Département de Pédiatrie, Hôpital Bicêtre, Le Kremlin-Bicêtre</s1>
<s2>Paris</s2>
<s3>FRA</s3>
<sZ>3 aut.</sZ>
<sZ>4 aut.</sZ>
<sZ>5 aut.</sZ>
</inist:fA14>
<country>France</country>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Blanche, S" sort="Blanche, S" uniqKey="Blanche S" first="S." last="Blanche">S. Blanche</name>
<affiliation wicri:level="3"><inist:fA14 i1="01"><s1>Unité d'Immuno-Hématologie, Fédération de Pédiatrie, Hôpital Necker-Enfants Malades</s1>
<s2>Paris</s2>
<s3>FRA</s3>
<sZ>1 aut.</sZ>
<sZ>6 aut.</sZ>
</inist:fA14>
<country>France</country>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
</analytic>
<series><title level="j" type="main">Archives of pediatrics & adolescent medicine</title>
<title level="j" type="abbreviated">Arch. pediatr. med.</title>
<idno type="ISSN">1072-4710</idno>
<imprint><date when="1997">1997</date>
</imprint>
</series>
</biblStruct>
</sourceDesc>
<seriesStmt><title level="j" type="main">Archives of pediatrics & adolescent medicine</title>
<title level="j" type="abbreviated">Arch. pediatr. med.</title>
<idno type="ISSN">1072-4710</idno>
</seriesStmt>
</fileDesc>
<profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>AIDS</term>
<term>Attitude</term>
<term>Child</term>
<term>Knowledge</term>
<term>Parent</term>
<term>Perception</term>
<term>Psychological effect</term>
<term>School age</term>
<term>Semidirective interview</term>
<term>Stress</term>
</keywords>
<keywords scheme="Pascal" xml:lang="fr"><term>SIDA</term>
<term>Enfant</term>
<term>Age scolaire</term>
<term>Attitude</term>
<term>Entretien semidirectif</term>
<term>Parent</term>
<term>Perception</term>
<term>Connaissance</term>
<term>Stress</term>
<term>Effet psychologique</term>
</keywords>
<keywords scheme="Wicri" type="topic" xml:lang="fr"><term>Enfant</term>
</keywords>
</textClass>
</profileDesc>
</teiHeader>
<front><div type="abstract" xml:lang="en">Objective: To investigate the patterns of disclosure and perceptions of human immunodeficiency virus (HIV) status in a group of HIV-infected elementary school-age children. Design: A survey. Setting: A referred care university hospital center. Patients: All HIV-infected children born before August 31, 1985, and scheduled for ambulatory follow-up between 1984 and 1993 were eligible for the study. A total of 35 HIV-infected (21 asymptomatic and 14 symptomatic) elementary school-age children (aged 5-10 years) were examined between 1990 and 1993. Main Outcome Measures: Semistructured qualitative interviews were used, 1 with the children and 1 with their parents or caregivers. In addition, 3 drawings per child were also analyzed. Results: Partial disclosure was observed in 14 (40%) of the children, and full disclosure of the diagnosis of acquired immunodeficiency syndrome was given to 6 (17%) of the children. Secrecy regarding serostatus was the strategy used by 15 (43%) of the parents or caregivers involving either complete nondisclosure (n=8) or deception by means of attributing the symptoms to another condition, medical or other (n=7). Perceived health status and clinical status differed for 11 (31%) of the children. Eight children did not identify any illness causality, and most of the others gave prelogical or concrete-logical explanations. Few children were aware of their parent's infection or disease. Conclusion: Human immunodeficiency virus-infected elementary school-age children were exposed to various disclosure patterns regarding their HIV infection or disease, and most children (26/35 [74%]) reported stressful experiences due to HIV regardless of the disclosure patterns.</div>
</front>
</TEI>
<affiliations><list><country><li>France</li>
</country>
<region><li>Île-de-France</li>
</region>
<settlement><li>Paris</li>
</settlement>
<orgName><li>Université Pierre-et-Marie-Curie</li>
</orgName>
</list>
<tree><country name="France"><region name="Île-de-France"><name sortKey="Funck Brentano, I" sort="Funck Brentano, I" uniqKey="Funck Brentano I" first="I." last="Funck-Brentano">I. Funck-Brentano</name>
</region>
<name sortKey="Blanche, S" sort="Blanche, S" uniqKey="Blanche S" first="S." last="Blanche">S. Blanche</name>
<name sortKey="Costagliola, D" sort="Costagliola, D" uniqKey="Costagliola D" first="D." last="Costagliola">D. Costagliola</name>
<name sortKey="Seibel, N" sort="Seibel, N" uniqKey="Seibel N" first="N." last="Seibel">N. Seibel</name>
<name sortKey="Straub, E" sort="Straub, E" uniqKey="Straub E" first="E." last="Straub">E. Straub</name>
<name sortKey="Tardieu, M" sort="Tardieu, M" uniqKey="Tardieu M" first="M." last="Tardieu">M. Tardieu</name>
</country>
</tree>
</affiliations>
</record>
Pour manipuler ce document sous Unix (Dilib)
EXPLOR_STEP=$WICRI_ROOT/Sante/explor/StressCovidV1/Data/France/Analysis
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 000334 | SxmlIndent | more
Ou
HfdSelect -h $EXPLOR_AREA/Data/France/Analysis/biblio.hfd -nk 000334 | SxmlIndent | more
Pour mettre un lien sur cette page dans le réseau Wicri
{{Explor lien |wiki= Sante |area= StressCovidV1 |flux= France |étape= Analysis |type= RBID |clé= Pascal:97-0548630 |texte= Patterns of disclosure and perceptions of the human immunodeficiency virus in infected elementary school-age children }}
This area was generated with Dilib version V0.6.33. |